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EQPERA

EQPERA – Patienters erfarenheter av hälsa, vård och behandling under första året med diagnosen RA: en longitudinell kvalitativ studie i tre europeiska länder

Om projektet

Projektperiod:

  • 2016–2024

Anslagsgivare:

  • Södra sjukvårdsregionen
  • Reumatikerförbundet

Partner/samverkan:

  • FoU Spenshult, Halmstad
  • Lunds Universitet
  • Region Skåne
  • Capio Movement
  • University Hospitals Leuven, Belgien
  • Radboud University Nijmegen Medical Centre, Nederländerna
  • Department of Patient & Care/Clinical Epidemiology and Medical Technology Assessment (KEMTA), Nederländerna
  • Syddansk Universitet, Danmark

Projektledare:

Projektdeltagare:

  • Ann Bremander, PT, PhD, professor, Syddansk Universitet, FoU Spenshult
  • Elisabet Lindqvist, MD, PhD, Lunds universitet, Region Skåne
  • Ellen Landgren, RN, doktorand, Lunds universitet, Region Skåne
  • Kristien Van der Elst, RN, MSc, PhD student, University Hospitals Leuven, Belgien
  • Rene Westhovens, MD, PhD, Professor, University Hospitals Leuven, Belgien
  • Elke Mathijssen, RN, MSc, PhD student, Department of Rheumatology, Sint Maartenskliniek, Nederländerna
  • Johanna Vriezekolk, PhD, Department of Rheumatology, Sint Maartenskliniek, Nederländerna
  • Yvonne van Eijk-Hustings, PhD, MSc, BNs, RN, FEANS, Senior researcher and rheumatology nurse, Department of Patient & Care/Clinical Epidemiology and Medical Technology Assessment (KEMTA), Department of Rheumatology, Maastricht University Medical Centre, Nederländerna
  • Elisabeth Mogard, PT, PhD, Lunds universitet, Region Skåne

Publikationer:

  • Landgren, E., Bremander, A., Lindqvist, E., Nylander, M., & Larsson, I. (2021). "Patients’ Perceptions of Person-Centered Care in Early Rheumatoid Arthritis: A Qualitative Study." ACR Open Rheumatology, 11326, 1-8. doi: 10.1002/acr2.11326
  • Van der Elst, K., Mathijssen, E., Landgren, E, Bremander, A., De Groef, A., Lindqvist, E., Nylander, M, Peters,A., Van den Hoogen, F., van Eijk-Hustings,Y., Verhoeven, G., Vriezekolk, J., Westhovens, R., Larsson, I. (2020). "What do patients prefer? A multinational, longitudinal, qualitative study on patient-preferred treatment outcomes in early rheumatoid arthritis." RMD Open, 6:e001339. doi:10.1136/rmdopen-2020-001339
  • Landgren, E., Bremander, A., Lindqvist, E., Nylander, M., Van der Elst, K., & Larsson, I. (2020). "'Mastering a New Life Situation' – Patients’ Preferences of Treatment Outcomes in Early Rheumatoid Arthritis – A Longitudinal Qualitative Study." Patient preference and adherence, 14, 1421-1433https://doi.org/10.2147/PPA.S253507
  • Van der Elst K, Bremander, A., De Groef, A., Larsson, I., Mathijssen, E., Vriezekolk, J., Westhovens, R., & van Eijk-Hustings, Y. (2019). "European Qualitative research project on Patient-preferred outcomes in Early Rheumatoid Arthritis (EQPERA): rationale, design and methods of a multinational, multicenter, multilingual, longitudinal qualitative study." BMJ Open, 9(3), e023606. doi:10.1136/bmjopen-2018-023606

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